Pre-op is next Monday

Please keep Dominic in your prayers on Monday June 9th as he goes in for his pre-op appointment. It will be a very busy day. It will start out with a blood test, then a chest x-ray and then we go upstairs for an echo, ecg and duplex scan. They will be sedating Dominic for the echo and hopefully that will make the day a little easier, but it will also make it a long day. We will be talking to a lot of professionals, who will be preparing us for the big day. Please pray that Dominic stays healthy and pre-op goes as scheduled.

Here is a poem by Stephanie Husted (a mom with a child who has similar defects to Dominic) that describes quite well where we are at right now awaiting the Fontan:

I've got Pre-fontan Syndrome...
And I can't concentrate...
I say off the wall things...
And I just can't think straight. I keep losing things...
(Yes...that includes my mind)
I've grown tired of hearing...
"Oh he'll be just fine".

I've got Pre-fontan syndrome...
My temper is weary...
One day I am happy...
The next day quite teary...
My husband says dear...
Tell me what to expect...
Will I come home to my wife?
Or come home to a wreck?

I have Pre-fontan Syndrome...
now I can't sleep at night...
And I'd do ANYTHING...
Just to make him "alright".

I have Pre-fontan Syndrome...
(Think I'll get that tatoo)
Then I might have the courage...
to face surgery too...

I have Pre-fontan Syndrome...
And I'll have the cure when...
I hand my son over...
and face "that day" again.

I have Pre-fontan Syndrome...
(not sure there's a pill)
To make me feel better...
(when it's over I will)

I have Pre-fontan synrome...
And with hope...
I do plea That someday this will seem...
Just a bad memory.